Useful Links


The Beautiful You MRKH Foundation, IncBYMRKH NEW

The Beautiful You MRKH Foundation, Inc., is a U.S. non-profit organization recognized by the IRS as a 501(c)(3) charity. Our mission is to create a supportive community that partners with health care professionals to increase awareness and empower women of all ages with MRKH to feel beautiful, just as they are.

BYMRKH promotes self-esteem and welcomes members from around the world. We believe that through our differences, we will find our greatest strengths. We envision a world where: 1. Physicians and their staff are knowledgeable and sensitive to women and teenagers with MRKH; 2. MRKH is widely recognized and openly discussed; and 3. Women worldwide will have a safe online community where they can meet others and share their triumphs and heartaches. We advocate for improved healthcare for women with MRKH through our association with the Accord Alliance Advisory Advocacy Network.

You can follow us on Facebook,Twitter (@BYMRKH), Pinterest and Instagram (@beautifulyoumrkh).


Sisters For Lovelogo-sisters-for-love

"To reduce a year of grief by one day or more, to connect women to women by an invisible bond and to learn the mastery of seeing and accepting beauty just as it is. Diverse. Eternal. Beautiful."

The Sisters for Love is the first and only official foundation in Australia which has been formed to provide support to those who have been diagnosed with MRKH and to extend that support to those close to them. We aim to provide comprehensive information on the condition of MRKH and to openly share our goals and objectives for the future of this unique community. The Sisters for Love seeks to improve the journey that a woman will take when diagnosed with MRKH, alongside a sisterhood of women and medical professionals to offer support along the way.
Sisters in Silence. Sisters in Noise. Sisters for Love.


Mid Atlantic MRKHlogo-mid-atlantic-mrkh

"At the Mid-Atlantic MRKH Non Profit, our goal is to promote the emotional and physical well-being of women with MRKH in the Mid-Atlantic region by strengthening ties between affected women and their families, and helping women learn to embrace the identity of being an MRKH woman. We hold events such as support groups, medical conferences, and other events where MRKH women can come together and bond with one another. We also work on raising awareness of MRKH. If you are interested in joining us in any of our events, please email us at This email address is being protected from spambots. You need JavaScript enabled to view it.



MRKH Norge


We are a Norwegian MRKH NGO offering support for patients in Scandinavia. We work with specialists in Norway and Denmark to help allow for a better understanding of how the patients are experiencing the process and how to treat them in the best possible way. We also work hard to raise awareness about MRKH in our country as many doctors still havent heard ab

out our condition. You can follow us on Twitter, Facebook, Pinterest @mrkhnorge - We also run a quote page in support for MRKH woman around the world - 



MRKH Russia


This site has been made to encourage all of you and, especially girls with MRKH from Russia, to give you confidence and to provide you with the necessary information about the syndrome and the ways to deal with it. "Дорогие девушки, этот сайт создан для всех вас, прекрасных и сильных женщин с синдромом СМРК. Здесь вы найдете поддержку, а также всю необходимую информацию о нашем диагнозе"



MRKH Connect Partners

Effortless Sites

A young, fresh and dynamic company based in Edinburgh that has been responsible for the innovative and pacey development of this website. Ongoing, they are both hosting and managing the maintenance of this site.

Queen Charlotte and Chelsea Hospital

Specialist Hospital in the UK - Queen Charlotte and Chelsea Hospital, London. Contact: Nuala Dixon on - This email address is being protected from spambots. You need JavaScript enabled to view it.

Charity Expert

Professional services for charities in England & Wales, specialising in formation and registration. Charity Expert have many years expertise dealing with charity applications, how to meet the strict legal requirements and establishing robust charities. Charity Expert helped MRKH Connect achieve its Charitable Incorporated Organisiation status in England & Wales (1157477).

Egremont Group

A London, UK based Management Consultancy business that specialises in fast, flexible and lasting business transformation. They are kindly helping MRKH Connect by providing both strategic direction and challenge, and in their spare time, organising and taking part in a number of fund-raising activities.

Studio Hagger

Experts in retail and environment design, based in Bath, UK. Hagger used their many years of branding creativity and expertise to develop and design the MRKH Connect logo which symbolises our main goal.

Labello Press

Labello Press is an independent publisher of new International Short Fiction. Based in Ireland, the creator of Labello Press - Deb McMenamy, is generously helping raise funds for MRKH Connect through book sales.